Patient Declaration on Medical Innovation and Access

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Name

Organization

Country

1

Durhane Wong-Rieger

Consumer Advocare Network

Canada

2

Judy Cutler

Canadian Association of Retired Persons (CARP)

Canada

3

Mary Kim

Canadian Arthritis Patient Alliance (CAPA)

Canada

4

Denis Morrice

Bone and Joint Decade

Canada

5

Cristina Caballero

Dialogue on Diversity

U.S.A.

6

Alicia Diaz

National Latina Health Network

U.S.A.

7

Shaleena Theophilus

Canadian AIDS Society

Canada

8

Marilia Casseb

Associação Brasileira do Câncer (ABCancer)

Brazil

9

Jacqueline Cahill

The Canadian Continence Foundation

Canada

10

Joseph Witalis

The Canadian Organization for Rare Disorders

Canada

11

Dominique Etienne

The Canadian Organization for Rare Disorders

Canada

12

Elisabeth Fowler

The Canadian Organization for Rare Disorders

Canada

13

Adrian Koning

Canadian Fabry Association

Canada

14

Joan Steevie

Cure Arthritis Now

U.S.A.

15

Elizabeth Helms

TMJ & Orofacial Pain Society of America

U.S.A.

16

Karen Vicari

Alliance for Better Medicine

U.S.A.

17

Dr. Gene Copello

The AIDS Institute

U.S.A.

18

Adriana Feldman

Fundación Argentina de Talasemia (FUNDATAL)

Argentina

19

Sérgio Metzger

ADJ /RNPD/IDF-Saca

Brazil

20

Paola Furini Pantiga

Associação Brasileira de Esclerose Múltipla (ABEM)

Brazil

21

Merula Steagall

Associação Brasileira de Linfoma e Leucemia (ABRALE)

Brazil

22

Ana Maria Padovan

Associação Brasileira de Linfoma e Leucemia (ABRALE)

Brazil

23

Juares Pires de Souza

Associação Brasileira de Linfoma e Leucemia (ABRALE)

Brazil

24

Candida Carvalheira

Associação Brasileira de Ostomizados (ABRASO)

Brazil

25

Marcilene del Nero Ricci Machado

Associação Brasileira de Talassemia (ABRASTA)

Brazil

26

Flavia Toffoli Versolato

Associação Dá Pra Ir

Brazil

27

Nadir Amaral

Associação Pro Falcemicos (APROFE)

Brazil

28

Cássia Regina Zappellini de Souza

Centro dos Hemofilicos do Estado de São Paulo

Brazil

29

Maria Cecilia Magalhães Pinto

Centro dos Hemofilicos do Estado de São Paulo

Brazil

30

Tania Maria Pietrobelli

Federação Brasileira de Hemofilia

Brazil

31

Ever Felicio de Carvalho

Grupo Esperança

Brazil

32

Carlos Varaldo

Grupo Otimismo de Apoio ao Portador de Hepatite

Brazil

33

Stella De Carli Cardoso de Oliveira

Lágrima Brasil

Brazil

34

José Marcos de Oliveira

Movimento Nacional de Luta contra a AIDS

Brazil

35

Adriana Leocádio

Portal Saúde

Brazil

36

Luz Victoria Salazar

ACOPEL

Columbia

37

Yolima Mendez

Fundacion Colombiana de Leucemia y Linfoma (FCL)

Columbia

38

Laureen Orozco

FUNDREPA

Costa Rica

39

Haydee Benoit de García

Fundación de Apoyo al Hemofilico (FAHEM)

Dominican Republic

40

Silvia Castillo de Armas

ASOPALEU

Guatemala

41

Juan Guillermo Millan

Asociación Mexicana de Lucha Contra el Cancer

Mexico

42

Cinthia Batista

Asociación Panameña para la prevención de la Anemia Falciforme (APPAF)

Panama

43

María Elena Campos

Fundación Asoleu

Paraguay

44

Giovanna Bosleman

Asociación Vida Nueva

Peru

45

Raul Matamoros

Asociación Vida Nueva

Peru

46

Valeria Mouro

Asociación Uruguaya de Leucemias y Afines (ASUL)

Uruguay

47

Maria Isabel Gomez

Asociación de Ayuda a Pacientes Hemato-oncológicos (ASAPHE)

Venezuela

48

Cesar Garrido

Asociacion Venezolana para la Hemofilia

Venezuela

49

Anne Lyddiatt

Patient Partners

Canada

50

Amanda Caballero-Holmes

National Latina Health Network

U.S.A.

51

Virginia Ladd

American Autoimmune Related Diseases Association

U.S.A.

52

Dr. Wayne Taylor

Asthma Society of Canada

Canada

53

Vlastimil Milata

Association of Czech Diabetics

Czech Republic

54

Lenka Rejlová

Association of Czech Diabetics

Czech Republic

55

Josef Pohůnek

Association of psoriatics and atopic eczema patients

Czech Republic

56

Vojtech Pohůnek

Association of psoriatics and atopic eczema patients

Czech Republic

57

Jakub Śliwa

Foundation "To Rescue Children With Cancer"

Poland

58

Jarosław Tanaś

Foundation "To Rescue Children With Cancer"

Poland

59

Andrzej Bogdanowicz

Multiple Sclerosis Society of Poland - Division Wielkopolska

Poland

60

Karol Kurpet

Multiple Sclerosis Society of Poland - Division Wielkopolska

Poland

61

Wiesław Kowalski

Polish Association People Infected by Psoriasis

Poland

62

Wojciech Sławomir Wilkowski

Polish Association People Infected by Psoriasis

Poland

63

Aleksandra Baranowska

Urszula Jaworska Foundation

Poland

64

Anna Bordiuk

Urszula Jaworska Foundation

Poland

65

Miroslav Tkáčik

Association of Slovak citizens with epilepsy - Aura

Slovak Republic

66

Nora Tkáčiková

Association of Slovak citizens with epilepsy - Aura

Slovak Republic

67

Jozef Vratil

Association of Slovak citizens with epilepsy - Aura

Slovak Republic

68

Oľga Zichová

Slovak association of people with diabetes (Bratislava)

Slovak Republic

69

Katarína Štepánková

Slovenská asociácia cystickej fibrózy

Slovak Republic

70

Krasimira Todorova Gerginska-Yordanova

Association Compassion Alzheimer Bulgaria

Bulgaria

71

Mensura Drazic

Coalition of Associations in Healthcare

Croatia

72

Josipa Gazibara

Coalition of Associations in Healthcare

Croatia

73

Ritsuko Yamaguchi

Mood Disorders Association of Japan

Japan

74

Emiko Tsuji

Osaka City University Hospital Cancer Patient Support Group

Japan

75

Noriko Murakami

Pulmonary Hypertension Association of Japan

Japan

76

Maki Hamamoto

To Live With Cancer Society

Japan

77

Milan Hosta

Asthma and Sport

Slovenia

78

Gail Hunt

National Alliance of Caregiving

U.S.A.

79

Andrew Sperling

NAMI

U.S.A.

80

László Dobolyi

You Can Recover Association

Hungary

81

Tünde Kazda

CML and GIST patient´s Association

Hungary

82

János Kincses

Magyar Cukorbetegek Országos Szövetsége

Hungary

83

Antal Kovács

Tatabàuyai Csontritkulás Klub

Hungary

84

Márta Liebermann

Pluss Magyarországi HIV Pozitívakat Segítő Egyesületet

Hungary

85

Ilona Mártaszéki

Maygar Lupus Foundation

Hungary

86

András Nagy

Patient

Hungary

87

Mária Nemes

Public benefit Association of Patients Cured with Oxygene

Hungary

88

Kati Németh

Hungarian Osteoporosis Patient Association

Hungary

89

Pos Péter

Association of Asthmatic and Allergic Patients (ABOSZ)

Hungary

90

Magda Rohánszky

"Firebird" Foundation for Cancer Patients

Hungary

91

Sándor Sipőcz

Fejér Megyei Sclerosis Multiplexesek Egyesülete

Hungary

92

Artúrné Dr. Vasvári

Magyar Rákellenes Liga (Hungarian League Against Cancer)

Hungary

93

Nikolett Vinczné Marton

Magyar Sclerosis Multiplex Társaság alenloke

Hungary

94

Klára Zalatnai

Hungarian Osteoporosis Patient Association

Hungary

95

Zsuzsa Sendrő

Patient

Hungary

96

Martha Nolan

Society for Women's Health Research

U.S.A.

97

John Forman

New Zealand Organization for Rare Disorders

New Zealand

98

Julie Venners

Lupus Foundation of America

U.S.A.

99

Cynthia Wainscott

Mental health advocate

U.S.A.

100

Maira Caleffi

FEMAMA

Brazil

101

Nicole Massicotte

Alpha-1 Canada

Canada

102

Luz Marina Umbasia Bernal

Fundacion Henry Ardila

Columbia

103

Igreja Católica (Bispo)

Abílio Ribas

Democratic Republic of São Tomé and Príncipe

104

Christina Pohlman

APS Foundation of America, Inc

U.S.A.

105

Harry Kletzko

Deutsche Schmerzliga e.V. (German Pain League)

Germany

106

Joan Young

Platelet Disorder Support Association

U.S.A.

107

Stella Pavlides

American Vitiglio Research Foundation

U.S.A.

108

Kathleen A. Arntsen

Lupus Foundation of Mid & Northern New York, Inc.

U.S.A.

109

Mary Lou Ballweg

Endometriosis Association

U.S.A.

110

Joyce A. Kullman

Vasculitis Foundation

U.S.A.

111

Maria Ines Marchegiani de Ucke

Liga Argentina de Lucha Contra el Cancer

Argentina

112

Regina N. M. Kamoga

CHAIN Uganda

Uganda

113

Akiko Matsumoto

HPO Fine

Japan

114

Claudia Patricia Urrego González

FUNDAYAMA

Columbia